This past week Alora had another endocrinology appointment. I was hopeful that she had grown enough these past few months, but apparently she has only grown about an inch these past 15 months. (In comparison, her 4-year old brother, Max, has grown 4 inches these past 9 months!) Another bone x-ray revealed she was still quite behind, which means she will now have to have a 4-5 hour long "stim" test. The growth hormone (GH) stimulation test measures the level of growth hormone (GH) in the blood after you receive medication that triggers the release of GH, such as arginine or GH-releasing hormone. The test measures the ability of the gland to release GH.
Basically, she will have an IV inserted and have her blood drawn. She will then be given some stimulant through the IV that will encourage her GH to do it's job. Every hour or so her blood will be drawn to see if the GH is working properly. The entire process takes about 4-5 hours. She is NOT going to be a happy camper before or after. Thankfully, it's just the one initial poke and not every hour.
It takes about 2 weeks to review the results. Depending on what they show, she might have to have a MRI of her brain to check her pituitary gland. Once all of that is analyzed, we will know if she has to have daily hormone injections until she is about 12. Her doctor predicts her current full height to be 4'9", way below where it was predicted at age 2. Because of this, our insurance should cover most of the cost of injections. If not, we are looking at spending $800-$1000/month for the shots.
We have just barely started researching short stature and the whole hormone therapy deal. We would rather not have to subject her to daily shots, or all of these tests, but if we can give her a couple of additional inches, we know it would be easier around her classmates and friends. We'll just have to wait and see what this upcoming test reveals about her.


