After waiting almost 8 months (thanks, Covid), Alora was finally admitted today to have her 24-hour EEG done. A little over a year ago she was officially diagnosed with epilepsy. I had suspected absence seizures for some time, but hoped that they went away as she grew older. Unfortunately, they did go away but started to become more frequent. They got to the point where they became unsafe- dazing off while up at bat, walking into a swimming pole, walking out into busy parking lots, etc. After several different tests it was made official in October. She was put on lamotrigine and thankfully the medicine has worked really well. Today's test is to see how well the medicine is working while unstimulated and while asleep.
Currently, she has a ton of electrodes and wires glued to her head. All these wires are wrapped into a huge tube-sock looking hat and piled high on her head. She's quite self-conscious of how it looks and hides her face whenever a staff member walks in. Hopefully this test will just show that her current medicine is working as it should and we can go home tomorrow morning.
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| Getting the wires glued to her head. She WOULD NOT let me get a picture of her cool hat. |
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